So I have been researching this Hyperbarics oxygen therapy for the scarlet and Rhys, well I think we are gonna do it and I cant wait!! so here's the deal! the center is in Fort lauderdale yea pretty far away, and its a 3 week treatment...so me scarlet and rhys would have to be down there for 3 weeks the treatment involves them going into a oxygen camber for 1 hour then have a 4 hour intense therapy then back in the camber for 1 hour and they do this for 6 days a week! This place has been doing this treatment for 32 years and have had some amazing outcomes with children with CP, it is not covered by insurance so we will have to pay for it ourselves its gonna cost close to 7 grand, but we will find away to do it! we seriously have run out of options for Rhys the only thing the doctors want to do is keep pumping him with botox and these almighty dumb doctors cant even keep up with that they are much to busy so the let him fall behind and he is right back were he started! and seriously how healthy do you think it is to keep putting that crap in his body?? Oxygen is Oxygen sounds pretty good to me no crazy drugs no being put under, no stupid well see you in 6 months sorry we couldn't help you crap! when we go for a consulate they start treatment and we stay till they are done! I know its not a for sure cure but they seem to give me little more hope then the doctors that we have been paying out the ass for! I am so excited I cant even explain! here's there website if you want to read some more on this!
Ocean Hyperbaric
Oh and my friend Monica has a special needs son too that's 4 and we are gonna go down together and hes gonna get the treatment to, they seen kids with his condition before and after they under went this they got there vison back and had amazing results!! so yea I have someone to go threw it with me! :) we found airlines that will fund our airfare down there and back so that will save us some money and now we are on the hunt for a place to stay! got some ideas just working out the details with price and stuff!
so here's my plea...I am looking for anyone and everyone that might be able to help us out I need someone to help with mason and gage (and brad) LOL here at home! someone to watch the boys in the morning when brad goes to work and get them on the bus at noon, brad should be able to get them off the bus and handle things at night but Fridays they don't have school, so I need someone to watch them all day Fridays so brad can work! weekends brad should have it handled! I really need to figure things out so I can set up the date to go. so if you can help at all please let me know!! Thanks soooo much!!!!
XOXOXO
~Am
Tuesday, September 25, 2007
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4 comments:
Good Luck! I hope it works.
If you would need me at all in the mornings i could do it!
I can put up a jar at the salon so i can raise money for you guys. if you need anyone to make some meals i can fix some up so brad can pop them in the oven or microwave. i work 6 days so i wouldn't be able to babysit but i could give you some money to help pay a babysitter.
Jami
You write very well.
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