Friday, October 5, 2007

Excuse me...how much???

so today was our consult in Madison for the Hyperbaric therapy well it went good, it took 2 hours to get there we met with the doctor at 10 and I filled out a million papers, he thinks the kids are good candidates for the treatment so after that we met with the PT/OT and they were great we really liked them! They have some really neat treatments like suit therapy and spider therapy all things that sound like they will help the kids. I was really sold on the place. we did set some tentative dates of November 26 threw December 21 so that hopefully will be our four weeks of treatment, if we can get the funds to go, its gonna cost 30 grand for everything, 9 grand for 4 weeks intensive therapy each and 5 grand for 4 weeks hyperbarics oxygen therapy each. we might get a discount if we pay in full and maybe another for bringing both kids together I will have more info on that on Monday. but still that's alot of money that insurance wont cover any of it!! so that's about as far as we are right now we have to do some more talking and stuff and then I will have more info. but keep your fingers crossed for us!!! :)
other news miss Roxy has had this nasty lump growing out of her ear so I took her to the vet Wednesday and they say its a tumor they biopsied it but say it don't look bad but its in a spot they cant remove it so we will see what happens with that!
Kids are doing OK with school, me on the other hand not so well, Monday was good Tuesday was bad and I didn't send Rhys and Scar on Wednesday and Thursday, Tuesday they took the class for a walk and it was really hard to sit back and watch Rhys having to get pushed in a wheelchair and Scarlet walking the best she can with the walker and tripping all over. and all the other kids walking just fine! It was a real reality check for me and was hard to take in, I knew this was coming and its life but it was just harder then I was expecting!! so that on top of today's trip to Madison has made for a rough week here!
I am so frustrated and just want some answers and some help! I just want my kids to walk and play with the other kids! Rhys is so smart and mentally knows how to walk he gets how to take steps and wants to and really trys his body just don't let him! its so hard to listen to him asking why he can walk or telling me he wants to run with Gage. I don't understand how they do everything they do in this world today but they cant help a very smart 3 year old boy with CP and the only thing that's giving me any hope is gonna cost and arm and a leg! its not fare!! I seriously don't get life anymore nothing makes any sense anymore! But I'm gonna go to bed tonight and wake up to 4 amazing little kids that mean more to me then life itself, and have a what we call a "normal" day smiling laughing and just doing what we do and hoping things work out in our favor!! till then! keep smiling and moving on!
XOXOXO
~Am

2 comments:

Anonymous said...

Now that is crazy that insurance won't pay for any of it. Sorry. I hope everything works out.

Unknown said...

Hello,

Your story really touched me. I am Eileen and I own Therapies 4 Kids (www.therapies4kids.com)

We have HBOT and Suit Therapy in both of our facilities and we also have a non profit organization www.brightstepsforward.org set up to help moms like yourself to raise funds for these therapies.

If you need any help or have any questions, please call me at 877-NOWICAN.

I have a son with CP (Lucas - 4-1/2) who just had a achilles tendon lengthing surgery.

He went through hbot and suit therapy and we feel it has helped him tremendously!!!

Good Luck,

Eileen